The Help will be provided

Legislators supported the initiative of Vadim Krasnoselsky, aimed at providing financial support to families with people suffering from rare (orphan) diseases. As it was explained by the author of the law-in-draft the deputy Vadim Krasnoselsky, the document was developed on the basis of appeals of citizens whose children suffer from such severe hereditary disease, as phenylketonuria (PKU). According to reports, now 12 children suffer phenylketonuria in Pridnestrovie.

It is proposed, in particular, to prescribe by law the rules governing the free provision of citizens suffering from life-threatening and progressive chronic rare diseases, leading to reduced life expectancy and disability, drugs and specialized clinical nutrition products.

The Committee on Social Policy discussed the law-in-draft of Vadim Krasnoselsky, recommended to adopt it in the first reading.

Addendum and amendments, governing security of citizens suffering from rare diseases, drugs and specialized clinical nutrition products, as well as the procedure for medical assistance will be spelled out in the law "On the basis of public health protection", "On social protection of disabled people". Of course, the realization of these goals will need considerable financial resources. They must be found and put in the republican budget for the next year, according to lawmakers, emphasizing the necessity and importance of the proposed measures.